Thursday, July 16, 2009

WANT TO GET TO THE BOTTOM OF ALL OF THIS

Okay..this has gotten to be ridiculous...It has been almost 12 weeks since my consultation with the specialists in NY...Let me tell you..I am happy I went there...I know that they know all about Chiari and Syringomyelia...However.....I have been back in SC now for 10 weeks and I can not continue on with my care, b/c I do not have these damn consultation reports....It's suppose to be 13 pages, and it is valuable for my care. Come on now...I am a New Yorker...I like to get things done... and accurately....you would think my physician would be on the ball too! 12 weeks is enough time...surgeon or not.

Anyway..after a phone call to the office...and some pressure from their administrator I think I may get my reports hopefully by next week...I will be very disappointed if they do not arrive.

I really should have went to med school..Seriously...I could have probably solved these things myself..Really...Harvard should give me an honorary medical degree from all the research I have done for years on this...Seriously

Sometimes I really wonder....are all these symptoms coming from the SM, CM, and the Cranial Settling? This condition is a real pain in the ass..I am having a hard time accepting all of this... is this what it's going to be like or worse...I am afraid that the sudden increase of my symptoms these past two months is signaling a growth of the SM or worse...Only way to really find out is for another series of MRI's and F/U with a Neuro...But I can't do that until I get my damn reports..b/c the chances are (based on my experience), that the quality of my visit with a Neuro w/o the consult report from TCI will be useless!

I just want to get to the bottom of all of this, get the answers, do something if I can about it..and continue on with my life. Ugh!

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